A School Nurse of Distinction

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We sat in a ‘support group’ shortly after her diagnosis.  The parents at the meeting looked mostly sleep deprived and concerned.  A few smiled only when you smiled first.  The topic was Supporting Your Child With T1D At School: What you need to know.  I thought ‘Okay, this is an important topic’.  I normally talk, a lot, but in these meetings I think its helpful to just listen.  Most of the families have been dealing with this condition far longer than we have and we have a steep learning curve.  So, “shut up and listen”, I say to myself.  One parent sat with her arms crossed and said, “Our school nurse is terrible, absolutely terrible.”  She went on to describe how the nurse wouldn’t touch her daughter’s insulin pump and didn’t provide the basic care her daughter’s condition required.  This challenge drove her to write letters to the principal and superintendent, even the school board.  At one point, and rightfully so, she said incredulously “I mean, her care can mean life or death for my daughter”.  Continue reading “A School Nurse of Distinction”

Independence: Not Only Inevitable But Necessary

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What can a simple bowl of cereal represent?  For a child with T1D, more than you might think.  I don’t blame my sweet child for her desire for normalcy. To her, a bowl of cereal should just be a bowl of cereal and not a set of carbs that require counting and mathematical formulas to determine units of insulin to be given prior to eating. I get it on some level, though I can’t understand her experience completely.  As a mom, I just want to protect her and care for her.  That makes it easy  at dinner time to grab her insulin pump, determine the carbs on my own and plug it into her pump. But, doing this does not help her.  In fact, it harms her more than it could ever help her.  In our world, a simple bowl of cereal can represent independence. Continue reading “Independence: Not Only Inevitable But Necessary”

A Little Bling On Her Pump

In the early days of diagnosis we were thinking about the possibility of getting an insulin pump for A.  Hey, we are still in the early days, so I guess I’ll say the EARLIER days of diagnosis.  I’ll dig into that story more in a future post, but I want to highlight ways that we can make living every day life more enjoyable  for our sweet ones.   Changing infusion sites every 3 days is no fun.  Even less fun is the process of inserting a new sensor for a Dexcom.  Have you seen the needles on those things?  I engage in serious and prolonged pep talking with my sweet brown child when these events come up.  However, finding ways to get her excited about something makes the process so much easier.  What sweet one doesn’t want a blinged out insulin pump or Dexcom?!?!? Continue reading “A Little Bling On Her Pump”

A Lush New Discovery

You’ve heard it here before and it probably won’t be the last time either, A and I spend some significant time on her hair. I’m on the hunt again for organic products for my sweet one’s hair and skin.  Since diagnosis it seems like  her hair has gone through a ton of changes, but so has her skin.  The start of the winter months here haven’t helped. Both her hair and skin need some TLC and I am always on the look out for great natural products to meet that need.  To recap, some of our biggest issues have been, extremely dry scalp, skin and hair.  She seems to have also developed a sensitivity to certain products within the last six months or so. Continue reading “A Lush New Discovery”

Glitter for Emotional Wellness?

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Outside of my parenting and blogging life I am also an educator who is super passionate about social emotional wellness in children and adults.  Take a moment to think, you adults out there reading this.  When you were growing up, who taught you about your emotions?  Who in your life, whether you parents, teachers or other important people in your life, discussed emotions and their importance? Continue reading “Glitter for Emotional Wellness?”

A Sweet Book Review: T1D Superheroes

A book review of ‘Even Superheroes Get Diabetes’

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Screen Shot 2017-11-14 at 8.54.17 PMAsays “Mom, do you think I have Fly-A-Betes?”  I respond, “I don’t know.  We will need to test it out.”  She gets out of bed, climbs up on the side of the bed posts, puts both arms out and jumps.  Boom.  She looks at me.  “I didn’t fly, mom.”  She checks her insulin pump and tell me that her blood sugar is 136.  We look at each other and smile.  Tonight we read Even Superheroes Get Diabetes written by Sue Ganz-Schmitt. Continue reading “A Sweet Book Review: T1D Superheroes”

The Sugar Free Gang Is Never Sugar Free. Shout Out To You, JDRF!

Our experiences with the JDRF Sugar Free Gang monthly meetings and what it has meant to our sweet brown child and our family.

One Wednesday each month, regardless of the weather conditions (hey, we live in a part of the country known for epic winters) or what else we’ve got going on in our personal family life, we head out to the Sugar Free Gang. We rely on the support and education that comes from the monthly JDRF Sugar Free Gang meetings. During these sessions the sweet ones go with educators who do activities with them and the parents stay with guest speakers.  However, there’s more to these ‘meeting of the minds’ than just education.  It’s not without a little sweetness. Continue reading “The Sugar Free Gang Is Never Sugar Free. Shout Out To You, JDRF!”