Insulin Pumps, Illness, and Waiting

Every three months we go to the endocrinologist (the Endo). The appointments are long.  Anabel kind of dreads them.  Okay, she really really dreads them.  We review numbers, discuss questions, and re-up on prescriptions.  It ends and we wait for the next appointment.  However, one commonality of every appointment is a commendation we receive from our practitioner about how well her T1D is being managed, whether when dosing insulin with shots or, more recently, with an insulin pump.  We had the routine on lock!  That is, until illness enters the equation. Continue reading “Insulin Pumps, Illness, and Waiting”

The Comfort A Friend Provides

We carry with us, as human beings, not just the capacity to be kind, but the very choice of kindness.” -R.J. Palcio, Wonder

I saw something I hadn’t seen since Anabel was diagnosed. I took her and her friend (I call them A squared) to see a movie. Once we settled in with their snacks she comfortably took her insulin pump out of its belt in front of someone other than her family. She plugged her stats in and let it just hang out for a while. After completing her bolus she told her friend a joke, they both laughed together and she tucked her pump away.  Continue reading “The Comfort A Friend Provides”

Holiday Cookie Mania Hack

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One of our family traditions includes baking holiday goodies, especially cookies when we are all together with our extended family.  My sweet one loves to bake and enjoys learning in the kitchen.  Anabel is awesome with numbers, ratios and the like so baking is her jam.  What is not our jam, however, is guessing at the carb tallies for these sweet treats.  It can turn into an entire family dialogue.  I yell over to my sister, “Hey, how many carbs do you think is in one of your cookies?”.  She looks over at me with a bewildered side-eye and says, “I have no idea!”  I give her a side eye back and respond, “Well, how much flour did you use and how many cookies did it make?”  She takes out her phone, finds the recipe and from there it goes.  Continue reading “Holiday Cookie Mania Hack”

A Sweet Book Review: ‘Maggie’s Mystery’

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Sharing stories are one way that children can learn about themselves and the world around them. I’m a major advocate for representation in children’s literature, whether it’s their race or nationality, gender, interests or unique characteristics being represented. I think it’s important to have a range of literature that illustrate a diverse body of people. When it comes to my sweet one I want her to read great books with strong protagonists, women of color and great stories about people living with diabetes. I intently search for these books, sometimes having better luck than others. Continue reading “A Sweet Book Review: ‘Maggie’s Mystery’”

A School Nurse of Distinction

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We sat in a ‘support group’ shortly after her diagnosis.  The parents at the meeting looked mostly sleep deprived and concerned.  A few smiled only when you smiled first.  The topic was Supporting Your Child With T1D At School: What you need to know.  I thought ‘Okay, this is an important topic’.  I normally talk, a lot, but in these meetings I think its helpful to just listen.  Most of the families have been dealing with this condition far longer than we have and we have a steep learning curve.  So, “shut up and listen”, I say to myself.  One parent sat with her arms crossed and said, “Our school nurse is terrible, absolutely terrible.”  She went on to describe how the nurse wouldn’t touch her daughter’s insulin pump and didn’t provide the basic care her daughter’s condition required.  This challenge drove her to write letters to the principal and superintendent, even the school board.  At one point, and rightfully so, she said incredulously “I mean, her care can mean life or death for my daughter”.  Continue reading “A School Nurse of Distinction”

Independence: Not Only Inevitable But Necessary

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What can a simple bowl of cereal represent?  For a child with T1D, more than you might think.  I don’t blame my sweet child for her desire for normalcy. To her, a bowl of cereal should just be a bowl of cereal and not a set of carbs that require counting and mathematical formulas to determine units of insulin to be given prior to eating. I get it on some level, though I can’t understand her experience completely.  As a mom, I just want to protect her and care for her.  That makes it easy  at dinner time to grab her insulin pump, determine the carbs on my own and plug it into her pump. But, doing this does not help her.  In fact, it harms her more than it could ever help her.  In our world, a simple bowl of cereal can represent independence. Continue reading “Independence: Not Only Inevitable But Necessary”