I am literally honored to introduce tonight’s blog and the guest blogger who is an integral part of our village. She is passionate about our sweet brown child and sharing our experience with a community of people it can help. Our contributor tonight is my twin sister, Topaz, who herself is a force to be reckoned with. Here are some of her words about our story:
“We all have specific days that remain as vivid in our minds as the day itself. Anabel was 2 years old, wearing a pink plaid skirt and a pink wind breaker. Her curls were short and bounced as she walked. The day was beautiful, sunny with the slightest bit of wind. My mother and I decided to take our sweet brown child on a walk to a nearby park. We strolled along, chatting, with Anabel quietly taking in the sights. She was never a child to say much, but she observed everything.
We arrived at the park and released her from her stroller, allowing her to explore on the grass. I sat on a nearby bench watching her, the sunlight shimmering along side her. She found a dandelion…picking it up and placing it in her mouth. I rushed to her, taking away the weed, replacing it with apple juice…a welcomed substitute. I watched her with the love of a mother. Technically, I’m just the aunt, but in my heart she is my child. Like all parents (or in my case faux parents) I watched my sweet girl as she played. I thought about what her life could be. Will she be a dancer? A doctor? A teacher? An artist? Will her heart be broken? Will she make good choices? Will she learn the value of kindness? I hope she finds true happiness. I hope she always loves me and lets me love her always.
That day, as we played in the sun, I never imagined that my daughter-niece would be faced with an obstacle, like Type 1 Diabetes, so early in life. Unlike my sister, I find it difficult to hide how I feel. If I feel angst or sadness it is, invariably, written all over my face. When Anabel came home from the hospital after diagnosis I worried. I worried about Anabel, I worried about my sister. I wanted something else for her life. I didn’t want her to face this type of obstacle and the limitations that can come with it.
Full disclosure, I am an attorney (don’t hold it against me) with a love of all things United States Supreme Court (corny, yes I know). After learning of Anabel’s condition I began doing research and found that Sonia Sotomayor is a Type 1 diabetic. Reading an article about her initial diagnosis and how she’s managed her condition was both reassuring and inspiring. While speaking to a young group of onlookers, who also suffer from Type 1 Diabetes, the Justice noted: “You get to do anything you want in life, because I have…”
Life doesn’t stop post-diagnosis, the way we live it may change a little bit, but we continue on, attempting to live our lives in the fullest manner possible. My two year old sweetheart, with the short, bouncing curls has grown up…maturing in ways that are unexpected. But if I look closely, the innocence is the same…her quiet, exploration continues.”